Retinitis Pigmentosa

  • About this page
  • Treatment options
  • Genetics
  • special considerations
  • general information

About This Page

Retinitis Pigmentosa differs from Macular Degeneration and Stargardt disease in that there is progressive loss of peripheral vision. Central vision is usually preserved, but in advanced stages it is like you are looking at the world through a rolled up newspaper.

People with Retinitis Pigmentosa (RP) also have very decreased vision at night. In the diagnostic workup, they have severe abnormalities in a test called an electroretinogram where stimulation of the retina with bright lights fails to excite any electrical reaction in the brain.

RP is part of a group of diseases called the cone-rod dystrophies. An old name, “fundus flavimaculatus” comes from the flame shape distortions of the retinal pigments seen on exam.

Grace Halloran, PhD had RP. She is the pioneer who developed the programs we discuss here and you would definitely benefit from reading her autobiography, Amazing Grace: Autobiography Of A Survivor. It will inspire you and give you hope for what is possible to preserve and restore your own vision.

These pages and this website are here to inform you of the things you can do, the history of retinitis pigmentosa treatments, the science behind it and stories to help give you some hope for your own vision. There is Hope for Sight.

We've tried to organize this material in a logical way. Please browse the tabs below and if you have questions please contact us. If you are ready to start program of self-directed treatments that can stop the vision loss and even restore lost vision then you will definitely want to contact us. Thank you.